About RettSearch

RettSearch is an international, multi-center collaborative network of clinically-oriented researchers. Its mission is to promote the development of new therapeutic approaches for Rett syndrome (RTT) by collecting information and pursuing research in areas of relevance to clinical trials in RTT. Under the leadership of the Executive Committee - Sarojini Budden, M.D., FRCPC; Daniel Glaze, M.D.; and Walter Kaufmann, M.D. (Coordinator) - members are grouped into committees or "working groups," each with a specific theme and task. Clinical researchers interested in applying for membership should send a current CV to the RettSearch Coordinator. Learn more about our History/Mission and Expected Outcomes.

Participate in our RettSearch Forum
focused on the classification of
Rett syndrome in the upcoming ICD-9

InterRett

InterRett: The Value
of International Data
Learn more...

RettBase

The IRSA MECP2 Variation Database

RettBASE aims to provide a list of all published MECP2 gene variations (including polymorphisms), whereby unpublished data can be submitted and made available to all researchers. Learn more...

Links to NIH Funding Resources

National Institute of Child Health and Human Development (NICHD)

National Institute of Mental Health (NIMH)

National Institute of Neurological Disorders and Stroke (NINDS)

Office of Rare Diseases (ORD)